Author: director

Anxious

Getting house ready for Pre-chemo and treatment. Neighbor is glad to keep the garden watered. Will most likely stay at my father’s place during the first week of lympho depletion so I am closer to the Hospital.

Pain and suffering are often teaching tools. Pain helps us push beyond our nature and helps us grow. Suffering seems to result from our refusal to see that things need to change. In this way, pain is a tool toward change and suffering is a consequence of not changing. — Unknown

Mar 13th Sister Meets Team

My sister decided many weeks ago that meeting with some members of the team would be advantageous for her understanding of what the process was and more particularly the dates that she would need to know about for when I will need assistance from her or another family member.

All three team members got to gather in a room with her and I and discussed many items that my sister had and then explained the dates and time process of the new treatment. Was a great day for everyone and friends were made.

Mar 12 Energy

It’s Tuesday and for some reason I picked up an amazing amount of energy. So I caught up with prepping the house for the dreaded southwest summer, coming up. The catch was that I had to be constantly eating or drinking to keep the flow going. I would work then get hungry after ten minutes or so. Small bits of protein bar or electrolyte drinks did the trick each time.

My wise sister mentioned that this new energy could be coming from your mind telling you the you _are_ getting help soon and that it recognizes help is on the way.

Sure good to be out of that depression/low-energy state.

Wed 5 Mar

Yesterday I finally tried this trick that one of the nurses suggested, for Hiccups. She mentioned filling a glass with water then putting a cloth over the glass, and drink the water through the cloth… Guess what? It works.

So now I am documenting this as I may need to come-back-to, revisit this method some time later on.

I was surprised it worked but the nurse said she got this tidbit from her grandma. So I should have enough faith to try it. Sure enough…. It doesn’t matter how much you drink. The first time it was about a third of a smaller mouth Mason jar. Waited a few seconds and the hiccups where gone.

I tried this again maybe halfway through the day; when they started coming back. this time it took just maybe a few ounces. I will update everyone if this does not work at some point and time. I do have the prescribed muscle relaxers and will need them if not having success with the drink through cloth method.

I also found that breathing in vinegar—yeah, I know sounds terrible—just breath in through the nose and at minimum capacity (small sniffs). This works when I first got them, but seems to not works as well at certain times. Also try lemon juice. About a teaspoon, straight down the pipe.

 

Heal the Body with Code

So I had this concept that I some how came across that is relative to the treatment of cancer which also relates to programming and writing code.

In HTML5 programming there are always tools to manipulate and change parts of a website. If you would like to change the color of a section, you would simply add some code to the source code and you have a new color. Imagine color controls being akin to blood chemistry.

You could simply add some lines of code to the human input device… that fixes the anomaly of the body part. As I had dreamed that this was possible the number of methods one could use to make this work would be very complex as it would need to have an interface of some type, albeit temporary access or a semi-permanent  connection to the brain or to other more localized organs, long enough to get results.

The code used for HTML (websites and database base code) is called CSS stylesheet. The stylesheet holds the controls for size, weight (thickness of fonts), color and position. In my dream it was so easy to use the CSS generated code to relate to a code base mechanism to power [a] Human Cascading Style Sheet. Drop in some code and you have a newly designed website. Yes this is extraordinary, but sharing this as a dream I had was actually visualized it as being as simple as pie. But in real life the idea of a control sheet for various generations of patients would be more like “simple as Pi.”

Feb 25 Visit

Had some more blood drawn at Research clinic. Before that got another ECHO to look at my heart.

Visited Chase, Samantha  & Molly to revisit my flu like symptoms. Biggest symptom was the hiccups. They ordered Baclofen 10mg

In Clinic Exam

Came in the day after leukapharisis to get examine. May have slight virus; is what the doctors said. They drew some labs and decided to run an IV with hydration and added low does of Ondansetron to help nausea.

When I got home that day—feeling much better than before I left—I got to thinking that the one thing no one added to the giagnosis was the fact that the blood transfusion, the day before, gave me oxycodone for the pain I was having (arthritis). I remember having a reaction to it around 5 years ago and I did hurl.

Leukapheresis

Took 4 hours in the Apherisis Dept. was not real happy with the nurses ability to get a needle into a vein. They called line and use an ultrasound to find a good one.

Then as soon as I left, I went across the street to Sprouts to get some food and drink but I threw up whatever I ate. Driving home was fine, I had no issues with that. Got home very week and had flue like symptoms. Did Covid test that did not show anything. ended up calling the clinic and they asked me to come in the next day to get an IV and so they could draw some blood. Blood looked good except low Albumin. Two doctors came to conclusion that it was a reaction to the leukapheris and also I may have picked up a bug.

There were not too many people wearing mask in the procedure room. On one side of the office there were nurse doing bone marrow work. They were all wearing masks. On the other end of the room the side I was on; 1 out of 5 nurses wore a mask and none of the patients, other than myself.